Many patients facing serious illness say that some of the most difficult things to deal with are pain, stress and a loss of control. This is because an illness like cancer, COPD, kidney disease or ALS can make an independent person feel helpless for the first time in their lives.
When we go into the hospital, we want to be treated for whatever is ailing us. We also expect to be heard and validated.
When Toby Palma, a Las Vegas, Nevada woman in her early 40s, went into the emergency room several times complaining of severe pain all over her body, the doctors kept telling her it was a minor kidney infection. … Read More
Kat Harrison of Dayton, OH has never been the type to sit around. As a former softball player and as a hard-working professional who often balanced multiple jobs, she has always been on the move. And luckily for her, she’s a frequent babysitter to four rambunctious grandchildren. As a result, she can often be found running around trying to keep things under control. She doesn’t mind.
“Oh my gosh, what isn’t there to like about being a grandmother? You see, being a parent is great, but being a grandparent is even better because you can be there for them and play with them, but then you get to send them back home and get some rest,” says Kat through laughter. … Read More
Marion Blankenship of Charlotte, North Carolina lights up when she talks about her family, especially her eight grandchildren. She beams with pride when you ask her about her job working with kids at a childcare development center. And, she smiles ear to ear when she talks about her hobbies, like singing in church, cooking, or exercising at her local YMCA. … Read More
Ever since 74-year-old Joyce Montgomery of Atlanta, Georgia was diagnosed with liposarcoma—a rare form of cancer that arises in the fat cells of soft tissue—she’s faced major decisions about her treatment. As her illness has progressed, she has also struggled with anxiety and physical symptoms from her disease and treatment. Through it all, Joyce has had one mission: to keep doing the things she loves for the people she loves.
This is Joyce’s Palliative Care Story. … Read More
First, it’s very important to understand exactly what palliative care is. Palliative care (pronounced pal-lee-uh-tiv) is specialized medical care for people with serious illness. It provides relief from the symptoms and stress of a serious illness. The goal is to improve quality of life for both the patient and the family. Palliative care teams work with your other doctors to provide an extra layer of support. And, you don’t have to wait to get it.
But how does palliative care specifically support patients and their families at diagnosis? … Read More
When Amy Berman of New York City was diagnosed with stage 4 inflammatory breast cancer, she learned that only a small percentage of people with her diagnosis survive to five years. That was five-and-a-half years ago, and Amy is still here. In fact, she is as active and fulfilled as she has ever been. She credits palliative care with keeping her healthy and lively as she deals with her illness. This is a story about making difficult but informed decisions. This is a story about finding happiness in the moment. … Read More
Navigating the uncertain waters of high school and college can be challenging for anyone. Imagine spending those pivotal years with a serious illness.In the face of chronic pain and discomfort, constant doctor’s visits and hospitalizations and the stress that comes with giving up so much at such a young age, her goal is simple: to live the best life possible. … Read More
In this episode, we hear from Marion Case and his wife Tina. Marion has been living with Multiple Myeloma for the past two years. The pain and symptoms from both his illness and its treatment have greatly affected his quality of life but since receiving palliative care, his pain and symptoms are under control. … Read More
In this episode of our ‘Quality Life’ series, we hear from Debbie, a hair dresser, a business owner and a proud grandmother diagnosed with Multiple Myeloma. Debbie was in a great amount of pain while receiving treatment for her illness. Then she found palliative care … Read More