For Policymakers

Palliative care is specialized medical care focused on relief of the symptoms and stress of serious illness. The goal is to improve quality of life for both patient and family.

Palliative care is provided by a specially-trained team that includes physicians, nurses and other specialists who work together with a patient’s other doctors to provide an extra layer of support. Palliative care is appropriate at any age and any stage in a serious illness, and it can be provided along with curative treatment.

It is based on need, not prognosis.

 

Diffusion of Healthcare Innovation

Over the last decade palliative care has been one of the fastest growing trends in health care. In fact, palliative care prevalence in U.S. hospitals has shown a steady increase since 2000. This growth has occurred primarily in response to the increasing number of Americans living with serious illnesses, and to the caregiving realities faced by their families.

Today’s healthcare delivery system is mismatched to the needs of seriously ill patients because it is not designed to meet their needs.  Our fragmented health care system makes it difficult to effectively treat seriously ill patients—just when their numbers and needs are growing exponentially. Palliative care practices best respond to the episodic, long-term,and costly nature of serious, multifaceted illness.

Palliative care ensures that symptoms are managed, treatment goals are matched to personal goals, and communication is maintained in what is often a long, complex course of serious illness. Learn more by reading America’s Care of Serious Illness: A State-by-State Report Card and the policy section of capc.org.

Research Shows People Want Palliative Care

Palliative care is expected to increase as the public becomes more aware of its benefits. Recent public opinion research by the national polling firm Public Opinion Strategies reveals that even for those patients who are uninformed about palliative care, once they understand what it is, 92% report they would be highly likely to consider palliative care for themselves or their families if they had a serious illness. 92% also said they believe patients should have access to this type of care at hospitals nationwide.

Improved Quality Leads to Cost Reduction

Today, millions of Americans are living with serious illness, and this number is expected to grow exponentially over the next 25 years. About 20% of all Medicare beneficiaries have 5 or more chronic conditions, and two-thirds of Medicare spending goes to cover their care. This patient population is also the most likely to benefit from palliative care. Recent studies indicate that by closely matching treatments with patients’ goals, and improving their quality of life and quality of care, palliative care can also provide substantial cost reduction.

Policy Changes Would Help

Policy initiatives that address workforce needs, research and payment models linked to quality measures could rapidly bring palliative care to scale in the United States. Widely supported legislation is pending in Congress (PCHETA, most recently introduced in the 114th Congress as H.R. 3119and S. 2748) that would facilitate research, professional development and public education in palliative care. In addition, numerous state governments are developing new initiatives and passing supportive legislation. The implementation of necessary policies will enable us to meet the needs of our highest-need, highest-cost populations.

Data Sources: (1) American Hospital Association (AHA) Annual Survey Database™, 2000-2016. Chicago, IL: Health Forum, an American Hospital Association affiliate, and (2). The National Palliative Care Registry™, 2008-2016, a project of the Center to Advance Palliative Care and the National Palliative Care Research Center.