Podcasts

How Palliative Care Helped Amy Get Back to Her Hobbies

May 16, 2022

Amy is in her mid-40s and loves the outdoors—especially biking, hiking, and walking her dog. 

In the fall of 2018, she felt a lump on her neck, and when it did not go away, she visited her primary care doctor. After many tests, she was diagnosed with Stage 4 lung cancer that had spread to her lymph nodes and femur (thigh bone). She was devastated and scared.

A few weeks later, Amy started treatment with radiation and a medicine that helps the body’s immune system fight cancer. This combination can get cancer under control but may cause side effects.

After a month of treatment, Amy’s oncologist, or cancer doctor, recognized that she could use an extra layer of support to deal with her symptoms and stress. A palliative care nurse started to visit her at home every week and was available by phone whenever Amy needed to reach out. She helped Amy through her difficult treatments, both physically and emotionally. The goal was to get her back to feeling like herself again, which to her, meant being active and riding her bike.   

This is Amy’s palliative care story.  … Read More

Rae Anne Reflects: Achieving Your Goals

April 18, 2022

 

Rae Anne was diagnosed with stage 4 head and neck cancer after finding a lump on her neck. She is now in remission and back to share more of her story. This time, she joins the podcast to speak with Dr. Tony Back about how palliative care sees the patient as a person. They also discuss how palliative care helped Rae Anne and her family manage her symptoms, understand the path forward, and match her treatment options to her goals.  … Read More

A Quality Life: How Palliative Care Helps You Live Well with Serious Lung Disease

February 16, 2022

 

After struggling with shortness of breath for many years, Betsy was referred to a special lung care clinic. Worsening symptoms limited her ability to remain active, which in turn led to anxiety and depression. She struggled to care for her home and visit with friends; and felt like a burden to her husband. Betsy’s world was getting smaller.

At the lung care clinic, she met Dr. Patty Fogelman, doctor of nursing practice – who is trained to treat lung disease and as a palliative care provider. At the time, Betsy, a retired nurse, didn’t have an in-depth understanding of palliative care. In the years to come, she and her husband, and their family learned how palliative care manages many symptoms, and eases the many burdens faced by those living with serious illnesses. It also meant that Betsy learned new ways to keep enjoying her life.

This is Betsy’s palliative care story. … Read More

How Palliative Care Helps Families with Dementia Focus on Quality of Life

November 15, 2021

November is Alzheimer’s Awareness Month, so we are sharing Ann and Holly’s story about how palliative care has helped improve their family’s quality of life.  

Ann is a 92-year-old mother, grandmother, and former nurse, who has been living with dementia for 7 years. She also has COPD and heart problems. Anne has been able to live in her own home with the help of her daughter Holly, care from home aides, and the support of a palliative care team.  … Read More

Living Well with Serious Illness: April’s Palliative Care Story

October 17, 2021

October is Breast Cancer Awareness Month, so we are sharing April’s story. April was diagnosed with stage 3 breast cancer when she was 37 years old. She had 16 rounds of chemotherapy, 30 rounds of radiation, and a mastectomy.

When she was diagnosed, her life was centered around her two young daughters and her hair salon, which she owned and managed. The cancer and its treatment were devastating enough, but matters became worse when she had to stop working at the salon because of symptoms and side effects.  … Read More

A Quality Life: Palliative Care Helps Families Living with Dementia Focus on Quality of Life

May 25, 2021

Alzheimer’s disease and dementia are mostly known for memory loss that worsens over time, but it comes with a range of complex needs – for the person diagnosed and the family. And the health needs and safety concerns for all involved typically increase as the disease progresses. 

Ann, a 92-year-old mother, grandmother, and former nurse, has been living with dementia for about 7 years. She also has COPD and heart problems. Ann has been able to stay in her own home with the help of her daughter Holly, care from home aides, and a palliative care team. 

Holly and her family know firsthand that the palliative care team improves the quality of life for people with dementia and their caregivers by adding a layer of support. 

This is Ann and Holly’s palliative care story. … Read More

One Woman’s Story of Surviving COVID-19 at Age 78

December 1, 2020

 

The COVID-19 virus is still circulating in the U.S. and millions of people are still testing positive. Thankfully, most who come down with COVID-19 don’t have to be hospitalized. Even so, for many the symptoms can be extensive and recovery can take weeks or months. 

Listen to one woman’s COVID-19 experience, including the palliative care she received that helped keep her at home, and how she coped through six weeks with more than a dozen different and debilitating symptoms.  

This is Bobye’s story.  … Read More

A Quality Life: How Palliative Care Helps Joni Live Well with COPD

November 17, 2020

Sixty-six year old Joni knows all too well that living with the lung condition called chronic obstructive pulmonary disease – or COPD – can be stressful. The main symptom is shortness of breath, which worsens over time. The disease and treatments also cause coughing, wheezing, tremors, and emotional effects, such as anxiety and panic attacks, depression, and insomnia.

When Joni’s lung doctor of more than a dozen years referred her to a palliative care doctor, the goal was to address the worsening symptoms from the illness and its treatments, and help Joni live her life in the fullest way possible.

This is Joni’s palliative care story.  … Read More

Living Well with Serious Illness: A Young Mother’s Cancer Story

September 8, 2020

At age 37, April was diagnosed with stage 3 breast cancer. She endured 16 rounds of chemotherapy and 30 rounds of radiation, as well as a mastectomy. Her life centered on her two young daughters and the hair salon she ran and owned. The cancer and its treatment were devastating enough, but matters got worse when she had to give up her work at the salon because of symptoms and side effects. 

“Being a hairdresser was always something I wanted to be even as a kid. I was the girl putting curlers in my cat’s hair for practice. Not being able to work was really hard,” says April.

Her cancer doctor recognized that April could use an extra layer of support to deal with nausea and hot flashes, pain that made standing difficult for more than a few seconds at a time, and the emotional toll it was taking on her. The doctor referred April to a medical specialty to help her address these symptoms. The ultimate goal was to get her back to the job she loved.

This is April’s Palliative Care Story.  … Read More

Living Well with Serious Illness: Palliative Care Improves Quality of Life with Ovarian Cancer

May 18, 2020

As a speech language pathologist for young children, Ilene’s skills as an educator, careful listener and problem solver were keys to her career success. These factors also have played an important role for her through the many years she’s been treated for advanced ovarian cancer. It was a surprise diagnosis for the 68-year-old New Yorker that came in the fall of 2015 and changed her life dramatically.

She had a growing number of symptoms and side effects from treatments and surgery. When her cancer doctor referred Ilene to the palliative care team, Ilene didn’t know about the medical specialty. She had no idea how important it would be over the many years of her cancer journey, which included several recurrences. But ever-the-educator and problem solver, she went to the first appointment hoping for help to address many sources of discomfort.  … Read More

en_USEN