When living with a serious illness, it’s important to know that feeling easily and constantly tired—or fatigued—is a common symptom. In fact, many people experience fatigue, no matter if they are living with cancer, COPD, kidney disease, or another serious illness. Fatigue may make you or your loved one feel forgetful and unable to stay focused or have energy to do everyday things. This may include activities like seeing friends, pursuing hobbies, or even pursuing treatment for the serious illness. … Read More
Get Palliative Blog
If you or a loved one have received a breast cancer diagnosis, you know that it can be scary. You may have gone from thinking everything was okay to suddenly needing to decide about surgery and starting treatments such as radiation or chemotherapy. On top of this, you may experience symptoms such as pain, nausea, anxiety, and fatigue. Combined, this may all feel very stressful and overwhelming. You’re not alone. Palliative care can help. … Read More
Whether you have recently learned that your child is living with a serious illness (like cancer or a genetic disorder), or you received the diagnosis years ago, it is never easy to hear this news. Plus, running around from doctor appointment to doctor appointment is tiring and stressful. It can make you and your family feel out of control—at a time when you want to be in the driver’s seat.
Pediatric palliative care can help. … Read More
If you’re living with a serious illness like cancer, heart failure, and so many others, it’s easy not to recognize the symptoms of anxiety or depression. You may think it’s normal to feel sad or worried because of your diagnosis, and you may believe that these symptoms are tied to this. While it’s normal to have days when you’re feeling blue, if these feelings stick around, you’re having trouble sleeping or eating, or you’re not enjoying hobbies the way you normally do, something is wrong. Palliative care can help. … Read More
June is Pride Month, a time to celebrate the LGBTQ+ community’s voices, culture, and civil rights. In honor of Pride, we spoke with Dr. Noelle Marie Javier, who is a palliative care doctor and a woman of transgender experience. She works with patients every day who are living with serious illnesses, such as cancer and heart disease.
In our conversation with Dr. Javier, she shared a few things that people who identify as LGBTQ+ may want to keep in mind when visiting a palliative care doctor (or any other doctor, really!). … Read More
Amy is in her mid-40s and loves the outdoors—especially biking, hiking, and walking her dog.
In the fall of 2018, she felt a lump on her neck, and when it did not go away, she visited her primary care doctor. After many tests, she was diagnosed with Stage 4 lung cancer that had spread to her lymph nodes and femur (thigh bone). She was devastated and scared.
A few weeks later, Amy started treatment with radiation and a medicine that helps the body’s immune system fight cancer. This combination can get cancer under control but may cause side effects.
After a month of treatment, Amy’s oncologist, or cancer doctor, recognized that she could use an extra layer of support to deal with her symptoms and stress. A palliative care nurse started to visit her at home every week and was available by phone whenever Amy needed to reach out. She helped Amy through her difficult treatments, both physically and emotionally. The goal was to get her back to feeling like herself again, which to her, meant being active and riding her bike.
This is Amy’s palliative care story. … Read More
Rae Anne was diagnosed with stage 4 head and neck cancer after finding a lump on her neck. She is now in remission and back to share more of her story. This time, she joins the podcast to speak with Dr. Tony Back about how palliative care sees the patient as a person. They also discuss how palliative care helped Rae Anne and her family manage her symptoms, understand the path forward, and match her treatment options to her goals. … Read More
After struggling with shortness of breath for many years, Betsy was referred to a special lung care clinic. Worsening symptoms limited her ability to remain active, which in turn led to anxiety and depression. She struggled to care for her home and visit with friends; and felt like a burden to her husband. Betsy’s world was getting smaller.
At the lung care clinic, she met Dr. Patty Fogelman, doctor of nursing practice – who is trained to treat lung disease and as a palliative care provider. At the time, Betsy, a retired nurse, didn’t have an in-depth understanding of palliative care. In the years to come, she and her husband, and their family learned how palliative care manages many symptoms, and eases the many burdens faced by those living with serious illnesses. It also meant that Betsy learned new ways to keep enjoying her life.
This is Betsy’s palliative care story. … Read More
Meet twenty-three year old Aly, a college student who lives with Eosinophil-Associated Disease (EAD) of her gastrointestinal system. With multiple symptoms including chronic pain and discomfort, as well as stress, Aly’s palliative care team helps her manage it all.
This means helping Aly set goals for herself—both short term and long term—so that she is still able to participate in social activities, and attend band marches and performances at school. They also help her by working closely with her other doctors. … Read More