Tag: inspiring

Coping Strategies and Resources for Family Caregivers

August 5, 2019

By Andrew Esch, MD 

If you are caring for a loved one living with a serious illness, you are part of the largest workforce in the country. More than 43 million people – that’s almost one in seven Americans – are providing unpaid care for a chronically ill, disabled, or elderly family member or friend. Many of these caregivers are holding down a full-time job at the same time, and many are also raising children.  … Read More

Take Advantage of Free Palliative Care Webinars, Podcasts and Videos

May 4, 2019

Would you like to know about a medical team that can help you manage the symptoms and stress of living with a serious illness?  If you have cancer, COPD, heart or kidney disease, Parkinson’s, or any other serious illness, you might benefit from palliative care. If you don’t know much about it, watch and listen to the webinars, podcasts and videos on GetPalliativeCare.org.  You will learn from other patients, caregivers and palliative care experts as they explain how a referral to a palliative care team can help provide improve your quality of life. … Read More

Webinar on Demand: Managing Anxiety & Depression When Living with a Serious Illness

Listen and watch on-demand here.

Recorded: May 14, 2019

Featured Presenter:
Andy Esch, MD, MBA

Webinar Description:

If you or a loved one live with an illness like cancer, COPD, heart disease or others, you likely know the feelings of anxiety and depression. You may assume that it’s normal to feel sad or worried when you’re sick. While it is normal to have days when you feel blue, something is wrong if these symptoms don’t go away, if you’re having trouble eating or sleeping, or if you’re not enjoying things the way you normally do. … Read More

ABC WTVD-TV

How to maintain comfort during chronic illness

April 8, 2018  /  By Nicole M. Clagett

Treating pain and breathing challenges: Matt’s palliative care story

March 4, 2018

Matt is about to start another abstract painting. With classic rock music blasting in the background, he holds the brush between his lips, steadies his neck and presses the brush against the canvas.

A few months ago, Matt, 38, wouldn’t have believed you if you told him he’d be painting again. Fourteen years ago, a severe car accident left him paralyzed from the upper chest down. While his diaphragm wasn’t paralyzed in the accident, it was weakened significantly, which has caused Matt to have breathing problems that have grown progressively worse over time. Those issues coupled with severe nerve pain and the emotional stress of dealing with the traumatic events of the accident have been a daily struggle.

… Read More

Palliative care can help you say goodbye to nausea

January 18, 2017

If you have, or someone you love has, a serious illness, then you know how draining nausea can be. It makes you tired, uncomfortable and upset. Palliative care can help. … Read More

When should your doctor refer you to palliative care?

December 21, 2016

If you or a loved one are living with a serious illness, you should know whether palliative care is right for you. The first step is typically through the doctor who treats your illness. But not all doctors are clear on the definition of palliative care. … Read More

Living well with serious illness: Aly’s palliative care story

August 3, 2016

Navigating the uncertain waters of high school and college can be challenging for anyone. Imagine spending those pivotal years with a serious illness.In the face of chronic pain and discomfort, constant doctor’s visits and hospitalizations and the stress that comes with giving up so much at such a young age, her goal is simple: to live the best life possible. … Read More

New resources to help families navigate pediatric palliative care

May 27, 2016

The National Institute of Nursing Research (NINR) has created new materials for families of children with serious illnesses, as part of its Palliative Care: Conversations Matter campaign to raise awareness of and improve communications about pediatric palliative care. … Read More

NYC Alzheimer’s patients and caregivers – You can access help 24/7

May 11, 2016

Did you know Alzheimer’s is the sixth leading cause of death in the U.S.? It is estimated that more than half a million New Yorkers are either living with dementia or are taking care of someone who does.

CaringKind, a NYC-based organization focused on caregiving support for individuals and families living with Alzheimer’s and related dementias, offers MemoryLoss. This 24-hour helpline for NYC residents offers services and support, all free of charge. … Read More