It’s been almost 10 years since we recorded our first video with Debbie, and we are happy to report that she is doing well. This summer, Debbie agreed to join us for another video, to talk about how palliative care has helped her through the years. … Read More
Are you or a loved one living with a serious illness? Palliative Care can help. Palliative care is specialized medical care focused on relieving the symptoms and stress of a serious illness. It is appropriate at any age and at any stage, and you can have it along with curative treatment. The goal is to improve your quality of life.
June is Pride Month, a time to celebrate the LGBTQ+ community’s voices, culture, and civil rights. In honor of Pride, we spoke with Dr. Noelle Marie Javier, who is a palliative care doctor and a woman of transgender experience. She works with patients every day who are living with serious illnesses, such as cancer and heart disease.
In our conversation with Dr. Javier, she shared a few things that people who identify as LGBTQ+ may want to keep in mind when visiting a palliative care doctor (or any other doctor, really!). … Read More
Amy is in her mid-40s and loves the outdoors—especially biking, hiking, and walking her dog.
In the fall of 2018, she felt a lump on her neck, and when it did not go away, she visited her primary care doctor. After many tests, she was diagnosed with Stage 4 lung cancer that had spread to her lymph nodes and femur (thigh bone). She was devastated and scared.
A few weeks later, Amy started treatment with radiation and a medicine that helps the body’s immune system fight cancer. This combination can get cancer under control but may cause side effects.
After a month of treatment, Amy’s oncologist, or cancer doctor, recognized that she could use an extra layer of support to deal with her symptoms and stress. A palliative care nurse started to visit her at home every week and was available by phone whenever Amy needed to reach out. She helped Amy through her difficult treatments, both physically and emotionally. The goal was to get her back to feeling like herself again, which to her, meant being active and riding her bike.
This is Amy’s palliative care story. … Read More
Rae Anne was diagnosed with stage 4 head and neck cancer after finding a lump on her neck. She is now in remission and back to share more of her story. This time, she joins the podcast to speak with Dr. Tony Back about how palliative care sees the patient as a person. They also discuss how palliative care helped Rae Anne and her family manage her symptoms, understand the path forward, and match her treatment options to her goals. … Read More
Rae Anne is in remission from stage 4 head and neck cancer and enjoys sharing how palliative care changed her and her family’s life for the better. She is living well after treatment and wants to help other people living with a serious illness understand how palliative care can help them, too. In her video series, Rae Anne Reflects, she speaks with different members of the palliative care team. Her goal is to share how palliative care adds an extra layer of support for patients and families – from the time of diagnosis, through, and after treatment. … Read More
After struggling with shortness of breath for many years, Betsy was referred to a special lung care clinic. Worsening symptoms limited her ability to remain active, which in turn led to anxiety and depression. She struggled to care for her home and visit with friends; and felt like a burden to her husband. Betsy’s world was getting smaller.
At the lung care clinic, she met Dr. Patty Fogelman, doctor of nursing practice – who is trained to treat lung disease and as a palliative care provider. At the time, Betsy, a retired nurse, didn’t have an in-depth understanding of palliative care. In the years to come, she and her husband, and their family learned how palliative care manages many symptoms, and eases the many burdens faced by those living with serious illnesses. It also meant that Betsy learned new ways to keep enjoying her life.
This is Betsy’s palliative care story. … Read More
Meet twenty-three year old Aly, a college student who lives with Eosinophil-Associated Disease (EAD) of her gastrointestinal system. With multiple symptoms including chronic pain and discomfort, as well as stress, Aly’s palliative care team helps her manage it all.
This means helping Aly set goals for herself—both short term and long term—so that she is still able to participate in social activities, and attend band marches and performances at school. They also help her by working closely with her other doctors. … Read More
Many people don’t know what palliative care is or how it can help people living with a serious illness like cancer, COPD, or heart disease. So, let’s define it.
Palliative Care (pronounced pal-lee-uh-tiv) is specialized medical care that is focused on relieving the symptoms and stress of a serious illness. The goal is to improve quality of life for both the patient and the family. Palliative care is provided by a specially-trained team of doctors, nurses and other specialists who work together with your other doctors to provide an extra layer of support. It is appropriate at any age and at any stage in an illness, and it can be provided along with curative treatment.
Here is a great video, which explains palliative care very well. It compares people living with a serious illness to a bridge that needs support. While a serious illness may weaken the foundation, the palliative care team provides a stronger, necessary layer of support.