Are you or a loved one living with a serious illness? Palliative Care can help. Palliative care is specialized medical care focused on relieving the symptoms and stress of a serious illness. It is appropriate at any age and at any stage, and you can have it along with curative treatment. The goal is to improve your quality of life.

Living Well with Serious Illness: Ryan’s Pediatric Palliative Care Story

January 13, 2020

 

When Dan and Meghan’s five-year-old son Ryan was born with a rare genetic disorder that causes severe developmental delays and many other complications—they didn’t know where to turn. Seizures, surgeries, and sleepless nights due to respiratory issues that required frequent hospital stays in the first six months of Ryan’s life took a toll on the young parents. 

“I spent so much time on the phone dealing with insurance companies and coordinating doctor’s appointments that I wasn’t able to spend quality time with my newborn,” says Meghan. 

As the number of symptoms and medical issues increased, along with traveling long distance to get to the closest hospital, Meghan and Dan began searching for extra support. Social media research led them to a specialty that helps children and their families deal with all aspects of a serious illness.

This is Ryan’s palliative care story.  … Read More

Public Opinion Research on Palliative Care and Living with a Serious Illness

December 17, 2019

By Lisa Morgan 

Do people know much about palliative care? What are the top concerns of people living with a serious illness?  … Read More

Did Your State Make the Grade?

December 1, 2019

Did Your State Make the Grade?

By Lisa Morgan

Palliative care, also known as palliative medicine, is specialized  medical care that focuses on relief from the symptoms, pain and stress of serious illness. Appropriate at any age and at any stage of a serious illness, it is provided at the same time as all other treatments.

Palliative care is growing rapidly in the US as more and more people see the potential of palliative care to improve quality of care and quality of life. But getting palliative care is easier in some states than others.  … Read More

Living Well with Serious Illness: A Young Mother’s Colon Cancer Story

November 4, 2019

 

When Sarah, a mother of two young boys, was diagnosed with metastatic colon cancer at age 34, she was shocked and overwhelmed, but also determined to find the best care possible. She fought for a cancer doctor who would support her at every turn, and found specialists to address the many consequences of treatment she experienced. She enlisted her own pharmacist to help her understand and adjust the numerous medicines to minimize side effects. She found a pain specialist and physical therapist to help with difficult symptoms and side effects of treatment, and other doctors to round out her care team. She was willing to do anything to remain active and be able to care for her sons. 

“I think any serious illness is going to make a patient assess their life, their values, and their purpose,” says Sarah. “Patients deserve the highest level of care available and I wasn’t going to settle. Not for me and not for my children.”  

One day, she was telling a friend about the hand-selected care team she assembled to give her an extra layer of support through the cancer journey.  

“That sounds a lot like palliative care,” the friend said.  This is Sarah’s story.  … Read More

Tips for Discussing Your Diagnosis with Your Doctor

October 14, 2019

By Andrew Esch, MD

When you are diagnosed with a serious illness, it’s normal for you and your family to have a lot of questions. You may need help understanding the illness, treatment options and what the future holds. You may have concerns that you don’t know how to put into words yet. It can be very hard to think clearly, and even the best doctors don’t always explain things well.  … Read More

Free Webinar on Palliative Care 101 for Those Living with Colorectal Cancer

October 24, 1 pm ET, hosted by Fight Colorectal Cancer

Register Here

If you’re living with colorectal cancer, you know that pain, symptoms, and the side effects of treatments can take a toll on your quality of life. They can stop you from doing the things that are important to you. They can also lead to unwanted hospital stays. But palliative care can help.  … Read More

A Quality Life: “Rock Man” Willie’s Cancer Story

September 30, 2019

 

At a clinic in Dayton, Ohio—which provides chemotherapy treatment to cancer patients—there’s a man known by all as “Rock Man” Willie. When he’s there, Willie stops at each station to chat with people who could use a good distraction. He carries with him small hand-painted rocks he’s designed, and he hands them out to cheer up others who, like himself, are facing cancer and other serious illnesses. In return for these support rocks, Willie only asks for one thing: a smile. … Read More

Finding the Right Solution for Nerve Pain Through Palliative Care

September 15, 2019

By Andrew Esch, MD

If you are living with a serious illness that involves severe or persistent nerve pain, you know that it can take a toll on your quality of life. The pain can prevent you from everyday activities and doing things you enjoy. It can cause depression and anxiety. But it doesn’t have to be this way. While no single treatment works for everyone, there are ways to manage nerve pain to help get you back to living as fully as possible.
… Read More