Articles & Stories

For 50 years—three years of courtship and 47 years of marriage—Barbara and Laren of Atlanta have always struck the perfect balance. Barbara, the retired nurse and eternal optimist, is a bubbly dreamer who loves spending her free time in her garden so she can “hold mother nature’s hand.” Laren, the scientist and down-to-earth realist, is guided by practicality and a strict adherence to facts and numbers. Yet ever since the two met riding bikes while in college, they’ve been inseparable.

“We are very different people but it’s always just worked for us,” says Barbara. “Laren is the calm and patient one,” she adds through laughter.

Barbara has always been her family’s rock. While raising four highly-accomplished children or helping Laren deal with the struggles of his heart condition, Barbara has always been there standing strong. But more than two years ago, Barbara was diagnosed with pancreatic cancer, and seemingly out of nowhere, the couple’s lives flipped upside down.

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Looking for palliative care in your area? Here’s good news: GetPalliativeCare.org has just launched its new, expanded Palliative Care Provider Directory for patients with serious illness, their families, friends and caregivers. The new Provider Directory is specifically designed for users to identify and locate palliative care providers in their area, quickly and easily, in both hospital and community-based settings.

Palliative care is specialized medical care for people with serious illness. This type of care is focused on providing relief from the symptoms and stress of a serious illness. The goal is to improve quality of life for both the patient and the family. Palliative care is provided by a specially-trained team of doctors, nurses and other specialists who work together with a patient’s other doctors to provide an extra layer of support. It is appropriate at any age and at any stage in a serious illness, and it can be provided along with curative treatment.

Because of the growth, availability of, and demand for palliative care services beyond the hospital, the new Palliative Care Provider Directory lets users search for palliative care based on the setting where they can get the care: Hospital, Home, Nursing Home and Office/Clinic.

Along with the Provider Directory, the website has also been refreshed and relaunched. GetPalliativeCare.org is now easier to navigate and provides improved features such as webinars, briefings and multimedia presentations.

The Palliative Care Provider Directory is available at GetPalliativeCare.Org, CAPC’s online resource for patients and families. The website focuses solely on providing information on palliative care from the point of diagnosis.

When your loved ones are living with a serious illness, you won’t let them tackle the obstacles alone. Their struggles are your struggles. Their pain is your pain. Their fears are your fears. You listen to them, care for them, and walk their disease journey with them. You’re their rock on the days when everything seems too difficult to handle. You’re there to help them in any way you can.

But who helps you?

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Many patients facing serious illness say that some of the most difficult things to deal with are pain, stress and a loss of control. This is because an illness like cancer, COPD, kidney disease or ALS can make an independent person feel helpless for the first time in their lives.

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If you or a loved one are living with Alzheimer’s Disease or another form of dementia, you know you are facing a difficult road ahead. The disease begins with memory loss, confusion and trouble making decisions, and gets worse over time, eventually affecting basic control over the body. But with the help of a medical specialty called palliative care, there is a lot that can be done to make people living with dementia more comfortable and reduce their distress.

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Life with heart failure can be a difficult journey. Your symptoms may get in the way of day-to-day activities, your family members may worry about how to take care of you, and you may be unsure about what to expect and how to plan for your future. Palliative care can help make that journey easier for you and your family so you can live as well as possible.

Palliative care is team-based medical care that is focused on improving quality of life for people living with serious illness and their families. It provides an added layer of support to control your pain and symptoms and to coordinate your care. Your palliative care team will work closely with your heart doctor and any other doctors who are treating you, to make sure your treatment plan is right for you. … Read More

When we go into the hospital, we want to be treated for whatever is ailing us. We also expect to be heard and validated.

When Toby Palma, a Las Vegas, Nevada woman in her early 40s, went into the emergency room several times complaining of severe pain all over her body, the doctors kept telling her it was a minor kidney infection. … Read More

Do you or a loved one have a serious illness such as cancer, heart failure, lung disease or kidney failure? If so, you may be tired of taking trips to the emergency room and unwanted hospital stays to treat pain, shortness of breath or other symptoms. Palliative care can help you stay safely at home doing the things you love surrounded by the people you love. … Read More

Kat Harrison of Dayton, OH has never been the type to sit around. As a former softball player and as a hard-working professional who often balanced multiple jobs, she has always been on the move. And luckily for her, she’s a frequent babysitter to four rambunctious grandchildren. As a result, she can often be found running around trying to keep things under control. She doesn’t mind.

“Oh my gosh, what isn’t there to like about being a grandmother? You see, being a parent is great, but being a grandparent is even better because you can be there for them and play with them, but then you get to send them back home and get some rest,” says Kat through laughter. … Read More

When you or a loved one is facing a serious illness, there can be a lot of choices to make. You may have to make a decision on what hospital to go to for your care. Sometimes there are different options to choose from to treat your illness. Then there are questions like, “Should I continue working while my illness is being treated?” or “Should I go on vacation or stay home to rest?”

Luckily, there are medical professionals available to help you make the decisions that fit your priorities and goals. They are called palliative care specialists.

Palliative care is specialized medical care for people with serious illness. It gives you, your family and doctors an extra layer of support. It will treat your pain and other symptoms. It will help you understand your treatment options. And it will help you cope with the everyday challenges of living with a serious illness. Palliative care specialists will also work with you to tackle the tough decisions. They put you and your family in the driver’s seat. … Read More