In this episode of our Quality Life series, we hear from Angela James, a 37-year old woman living with a multitude of illnesses, including lupus and rheumatoid arthritis. As her symptoms worsened, her quality of life began to deteriorate, until she was referred to palliative care. … Read More
Get Palliative Blog
Living Well With Serious Illness: Angela’s Palliative Care Story
Angela James has been working since she was 15 years old. No stranger to hard work, she thrived at her job and she was in the prime of her life. She worked her way up the corporate ladder to a rewarding position as an accountant. She built a brand new house and was engaged to be married.
But things are different for Angela now. Angela has been living with a multitude of autoimmune disorders, including lupus, rheumatoid arthritis, scleroderma, and Raynaud’s phenomenon. … Read More
Measuring Quality of Care for the Sickest Patients
Four things you may not know about palliative care
Palliative care is a medical specialty that focuses on providing patients with relief from the symptoms and stress of a serious illness. The goal is to improve quality of life for both the patient and the family.
But many Americans still aren’t clear on what palliative care really is or how it can benefit them. Here are four things you may not know about palliative care and how it can help patients and families live well with serious illness: … Read More
A Quality Life: Episode 5, Mary’s Palliative Care Story
In this episode of our Quality Life series, we hear from Mary Tibbats, caregiver to her 88 year-old mother Mary Nolan, who has diabetes. After a rehab visit at the hospital to improve her blood flow, she went into congestive heart failure. Mary Tibbats shares how palliative care not only helped coordinate her mother’s care and improve her quality of life, but provided support to Mary as she dealt with caregiver burnout. … Read More
Alleviating Pain, Delivering Love
Palliative Care: What You Need to Know
Despite the highest per person spending on health care in the world, Americans report a rushed, fragmented and confusing experience with the health care system. Studies clearly show that symptoms are often under treated, and communication between physicians and patients about what is happening and what it means, is virtually nonexistent. Family caregivers struggle to make sense of their loved ones’ needs and how best to meet them. … Read More
Living Well as a Caregiver: Mary’s Palliative Care Story
Mary Tibbats knows firsthand what it’s like to care for an aging parent. She is the primary caregiver of Mary Nolan, her 88 year-old mother who has diabetes, but enjoyed an active lifestyle.
“Mom was 88 years old, totally and completely independent, except she didn’t drive any longer but she lived on her own,” Mary said. “She paid her own bills, ordered her own medication, sorted her medication every week, cooked her own food, went out and played Bingo, crocheted, did everything, totally independent, got up and around.” … Read More