Articles & Stories

After struggling with shortness of breath for many years, Betsy was referred to a special lung care clinic. Worsening symptoms limited her ability to remain active, which in turn led to anxiety and depression. She struggled to care for her home and visit with friends; and felt like a burden to her husband. Betsy’s world was getting smaller.

At the lung care clinic, she met Dr. Patty Fogelman, doctor of nursing practice – who is trained to treat lung disease and as a palliative care provider. At the time, Betsy, a retired nurse, didn’t have an in-depth understanding of palliative care. In the years to come, she and her husband, and their family learned how palliative care manages many symptoms, and eases the many burdens faced by those living with serious illnesses. It also meant that Betsy learned new ways to keep enjoying her life.

This is Betsy’s palliative care story. … Read More

Meet twenty-three year old Aly, a college student who lives with Eosinophil-Associated Disease (EAD) of her gastrointestinal system. With multiple symptoms including chronic pain and discomfort, as well as stress, Aly’s palliative care team helps her manage it all. 

This means helping Aly set goals for herself—both short term and long term—so that she is still able to participate in social activities, and attend band marches and performances at school. They also help her by working closely with her other doctors.  … Read More

Many people don’t know what palliative care is or how it can help people living with a serious illness like cancer, COPD, or heart disease. So, let’s define it.

Palliative Care (pronounced pal-lee-uh-tiv) is specialized medical care that is focused on relieving the symptoms and stress of a serious illness. The goal is to improve quality of life for both the patient and the family. Palliative care is provided by a specially-trained team of doctors, nurses and other specialists who work together with your other doctors to provide an extra layer of support. It is appropriate at any age and at any stage in an illness, and it can be provided along with curative treatment.

Here is a great video, which explains palliative care very well. It compares people living with a serious illness to a bridge that needs support. While a serious illness may weaken the foundation, the palliative care team provides a stronger, necessary layer of support.

November is Alzheimer’s Awareness Month, so we are sharing Ann and Holly’s story about how palliative care has helped improve their family’s quality of life.  

Ann is a 92-year-old mother, grandmother, and former nurse, who has been living with dementia for 7 years. She also has COPD and heart problems. Anne has been able to live in her own home with the help of her daughter Holly, care from home aides, and the support of a palliative care team.  … Read More

October is Breast Cancer Awareness Month, so we are sharing April’s story. April was diagnosed with stage 3 breast cancer when she was 37 years old. She had 16 rounds of chemotherapy, 30 rounds of radiation, and a mastectomy.

When she was diagnosed, her life was centered around her two young daughters and her hair salon, which she owned and managed. The cancer and its treatment were devastating enough, but matters became worse when she had to stop working at the salon because of symptoms and side effects.  … Read More

Rae Anne, who was diagnosed with stage 4 head and neck cancer after finding a lump on her neck, is back to share more of her story. This time, she joins our podcast to speak with Dr. Diane E. Meier about how palliative care helped change her life—and her family’s—for the better. 

If unfamiliar with her story, Rae Anne started chemotherapy and radiation treatments soon after her diagnosis. Later, she received a call from the palliative care team at her cancer center, who met with her and her family to help figure out how they can help. Together, they thought of ways to help Rae Anne feel more like herself, which included communicating with and coordinating care between all of her different doctors, managing her medications, and much more. 

Rae Anne shares, “I absolutely attribute palliative care to being able to take next steps, to becoming healthier again. They tied the knot that made everything better.” … Read More

As the COVID-19 pandemic rages on due to the Delta variant, vaccination has become an issue, unnecessarily. Vaccines are widely available, and are proven to be effective, however many Americans worry about their safety and whether or not they are needed. Studies have demonstrated that any of the COVID-19 vaccines will protect those who receive them from getting very sick from the virus – and should also help to stop it from spreading. 

Although more than 50% of Americans have already received their vaccine, others are still waiting. It is important for people living with a serious illness and their loved ones to receive the vaccine as soon as possible, to avoid getting sick from COVID-19 – and wear masks when in high-transmission areas of the country, even after vaccination.  

To learn more, we spoke with palliative care doctor, Dr. Anthony Back, who shared what all patients and families need to know.  … Read More

Are you or a loved one living with an illness like COPD, cancer, Parkinson’s, heart, or kidney disease? If you are, you might greatly benefit from palliative care – and you should demand it. … Read More

Rae Anne is on a mission to share how palliative care changed her and her family’s life for the better. She is living well, after treatment from stage 4 head and neck cancer, and wants to help other people living with a serious illness understand how palliative care can help them, too. Her video series, Rae Anne Reflects, includes conversations with different members of the palliative care team. Her goal is to share how palliative care adds an extra layer of support for patients and families – from the time of diagnosis, through, and after treatment.  … Read More

Alzheimer’s disease and dementia are mostly known for memory loss that worsens over time, but it comes with a range of complex needs – for the person diagnosed and the family. And the health needs and safety concerns for all involved typically increase as the disease progresses. 

Ann, a 92-year-old mother, grandmother, and former nurse, has been living with dementia for about 7 years. She also has COPD and heart problems. Ann has been able to stay in her own home with the help of her daughter Holly, care from home aides, and a palliative care team. 

Holly and her family know firsthand that the palliative care team improves the quality of life for people with dementia and their caregivers by adding a layer of support. 

This is Ann and Holly’s palliative care story. … Read More