In this episode, we hear from Shari McClendon, who has pulmonary hypertension. We also speak to her husband and devoted caretaker, Jim. Shari and Jim detail the critical role that palliative care has played in improving their quality of life. Shari and Jim speak to how palliative care has supported their entire family in a variety of ways. Mary Martin, a nurse on the McClendon’s palliative care team, shares how the palliative care team helped Shari and her entire family deal with the realities of this disease. At the core, this episode is about Shari and Jim, and how their 38 year marriage has endured.
Videos, Podcasts and Livechats
In this episode, we hear from Dannell Shu, whose son was born with severe brain damage. Dannell discusses the role the pediatric palliative care played not just in improving Levi’s quality of life, but in supporting the entire family as it navigated the waters of his chronic condition. Jody Chrastek, a nurse on the Shu family’s palliative care team, details how pediatric palliative care brought joy into Levi’s life in this moving take on what it means to care for a child living with serious illness.
In the first episode of our Quality Life Series, we hear from Christine Buehlmann, a California woman whose life changed dramatically after she was diagnosed with ovarian cancer and began receiving chemotherapy. Christine discusses how the physical and emotional symptoms of her disease and its treatment were hindering her quality of life, until she received palliative care. Both Christine and her palliative care physician Dr. Joshua Fronk elaborate on the critical role that palliative care played in Christine’s treatment and life in this honest and compelling take on living with serious illness.
David, a devoted family man, is a colorectal cancer survivor who suffered from complications as a result of his treatment. After repeated visits to the emergency room to deal with the pain, David asked for palliative care. His primary goal was to remain at home to enjoy quality time with his family. David’s palliative care team helps manage his pain but also provides psycho-social support for him and his family. Thanks to his palliative care treatment, David is now able to enjoy life at home as he continues his recovery. For more palliative care videos, visit the Get Palliative Care YouTube Channel.
This is Debbie’s palliative care story. Debbie is a hair dresser, a business owner and a proud grandmother diagnosed with Multiple Myeloma. Debbie was in a great amount of pain while receiving treatment for her illness. Then she found palliative care and as a result is back to work doing what she loves. Debbie’s palliative care team treats the pain and stress caused by her illness. For more information on how palliative care can help treat the symptoms of Multiple Myeloma, click here.
As part of its ongoing educational efforts to increase the public’s understanding of palliative care, CAPC has released a video animation that defines and explains what palliative care is and how it supports people facing serious illness.
This video – among the first of its kind on this subject – compares people facing serious illness to a bridge that needs support. While a serious illness may weaken the foundation, the palliative care team provides that necessary layer of support.
Major funding for this campaign is provided by the Cambia Health Foundation.
Waving from the saddle of a camel. Jet skiing to the Statue of Liberty. Climbing the Great Wall of China.
This is what you’ll find Amy Berman—who was diagnosed with stage IV inflammatory breast cancer in October, 2010—doing these days. Since choosing palliative care and remaining in control of her own medical decisions, Amy says she is enjoying a “full life” of work, travel and quality time with loved ones.
“I did something so simple yet so rarely done. I chose the road less taken, and it led to better health, better care, and significantly lower cost,” said Amy in a recent Health Affairs blog post. Amy is a Senior Program Officer at the John J. Hartford Foundation, a proud mother and a staunch advocate of how palliative care can benefit anyone facing serious illness as well as their families. This is Amy’s story, in her own images, as a reminder of how palliative care empowers patients and families to match their goals with the care they receive.
Palliative care specialists, advocates and patients discuss what palliative care is and how it is beneficial to those facing serious illness.
Dr. Diane E. Meier is Director of the Center to Advance Palliative Care (CAPC,) a national organization devoted to increasing the number and quality of palliative care programs in the United States.
In this video, Dr. Meier discusses 10 important steps in palliative care from over a decade of research. This video will serve as a valuable training tool and guide for medical professionals and their families.
Under her leadership the number of palliative care programs in U.S. hospitals has more than doubled in the last 5 years.
This project was inspired by the extraordinary spirit and legacy of countless children with severe illness and disability and their families. It is also a testament to the compassion and dedication of palliative care team members who have helped the families navigate the complexities of care.
The goal of this film is to increase awareness and understanding of pediatric palliative care. It showcases what care can be and should be for every family facing these challenges. The program at Akron Children’s Hospital in Akron, Ohio, is presented as a model of care that can be successfully developed and sustained in communities and pediatric hospitals across the country.
The film is appropriate for current and future health care professionals, educators, health care administrators, legislators and the community.
To order the DVD, fill out the order form and return, along with payment information to:
•Mail: Office of Palliative Care, NEOMED, St. Rt. 44, PO Box 95, Rootstown, Ohio 44272
For more information, please contact:
Office of Palliative Care
330.325.6360 or 330.325.6359