If you care for a loved one living with Alzheimer’s disease or another form of dementia, and are looking for ways to help them cope with loss in memory and brain function, you’ll want to know about a program called Music & Memory. … Read More
Tag: serious illness
By Andrew Esch, MD
If you have colorectal cancer, you know that your pain, symptoms, and the side effects of treatments can take a toll on your quality of life. Therefore, they can stop you from doing the things that are important to you. They can also lead to unwanted hospital stays. But palliative care can help. … Read More
On good days, you can find Paul in his house intently focused on one of his woodworking projects. It’s hard work, but it’s a labor of love.
“I’m not the type to sit still. I’m at my happiest when I’m working with my hands and creating something new,” says Paul.
The fact that Paul is able to get up and do woodwork is something even he couldn’t have imagined five years ago when he was diagnosed with Ewing sarcoma—a rare cancerous tumor that grows in the bones or in the tissue around the bones. A tumor in his spine caused immense back pain, made worse by symptoms from chemotherapy, radiation, and several spinal surgeries. He couldn’t do even the smallest of tasks.
That’s when he was referred to palliative care. … Read More
Would you like to know about a medical team that can help you manage the symptoms and stress of living with a serious illness? If you have cancer, COPD, heart or kidney disease, Parkinson’s, or any other serious illness, you might benefit from palliative care. If you don’t know much about it, watch and listen to the webinars, podcasts and videos on GetPalliativeCare.org. You will learn from other patients, caregivers and palliative care experts as they explain how a referral to a palliative care team can help provide improve your quality of life. … Read More
When Kelly—a central New Jersey woman in her early 30s—is asked what brings her joy, she doesn’t have to think very hard.
“It’s definitely being with my young son. He’s my world. His smile lights up my life,” says Kelly.
Since she was 12 years old, Kelly has faced an array of medical issues. Over the years, she has dealt with lupus, mitochondrial disease, a clot in her lung and main vein to the heart, and autonomic neuropathy. These issues have caused additional heart and bladder problems, as well as gastropareses, which affects the normal movement of muscles in the stomach. Kelly had done her best to deal with the chronic pain for nearly half her life, but in 2016, the issues became unbearable, and even the smallest task became an issue. … Read More
If you or a loved one is living with a serious illness and struggling with pain, stress or other symptoms, a referral to a palliative care team can help provide relief and improve your quality of life. While a doctor referral is usually necessary, here’s a place to start: the Palliative Care Provider Directory on GetPalliativeCare.org. The Provider Directory is designed to help you find and locate palliative care in your area, quickly and easily.
If you’re living with an illness, it’s not unusual to also suffer with fatigue. Fatigue is the feeling of being easily tired so that you are unable to do everyday tasks. You may feel especially forgetful, have a sense of general weakness, and feel unable to focus.
Fatigue is one of the most common symptoms of illness, but it is often not recognized by doctors. If left unaddressed, this symptom can undermine your quality of life and even your ability to pursue treatment for your illness.
Listen and watch on-demand here.
Recorded: February 12, 2019 @ 1:30 ET
Tara Liberman, DO
Shortness of breath is one of the most common symptoms for people living with a serious illness. It can be caused by asthma, cancer, heart failure, chronic obstructive pulmonary disorder (COPD), pneumonia, or other conditions. Struggling for air can be exhausting and frightening for you and for your caregivers. A palliative care team can help. Palliative care is available at any stage of your disease and the earlier you get it, the better. … Read More
How do I know if palliative care is right for me?
Palliative care may be right for you if you suffer from pain, stress or other symptoms due to a serious illness. Illnesses may include cancer, heart disease, lung disease, kidney disease, Alzheimer’s, amyotrophic lateral sclerosis (ALS), multiple sclerosis, Parkinson’s and many more. You can have palliative care at any age and at any stage of your illness, and you can have it together with treatment meant to cure you.
What can I expect from palliative care?
You can expect relief from symptoms such as pain, shortness of breath, fatigue, constipation, nausea, loss of appetite and difficulty sleeping. Palliative care helps you carry on with your daily life. It improves your ability to go through medical treatments. It helps you better understand your condition and your choices for medical care. In short, you can expect the best possible quality of life. … Read More
If you are living with liver disease, you know that your illness can affect almost every part of your body and the way you feel emotionally. It’s a difficult road to travel and can be frightening for you and for your loved ones. Palliative care can help. … Read More