Get Palliative Blog

The Coronavirus: How to Stay Safe with a Serious Illness

March 13, 2020

We are live with Dr. R. Sean Morrison, Professor and Chair of the Brookdale Department of Geriatrics and Palliative Medicine at Mount Sinai. Today, Dr. Morrison addresses what older adults should know about COVID-19, including risk factors, prevention tips, and more. #LiveAtMountSinai #Coronavirus

Posted by The Mount Sinai Hospital on Wednesday, March 11, 2020

This is a concerning time, especially for older adults and people living with a serious illness. Because of COVID-19, it’s important to protect yourself and loved ones as much as possible. In this blog post and video, Dr. Sean Morrison of The Mount Sinai Hospital discusses what a coronavirus is and provides important information and tips.  … Read More

Why You Should Request an Extra Layer of Support When Living with a Serious Illness

March 2, 2020

By Andrew Esch, MD

Did you know that most large hospitals in the U.S. have a specialized medical team that uniquely cares for people living with serious illnesses? If you or a loved one has any type of cancer, heart or kidney disease, dementia/Alzheimer’s disease, or any other serious illness, you should know about this extra layer of medical support. It’s called palliative care and focuses on relieving symptoms and stress that so often come with these kinds of illnesses.  … Read More

Living Well with Serious Illness: Rae Anne’s Story

February 6, 2020

Rae Anne was at a concert with friends when she found a lump on the side her neck. Worried, she left and scheduled various doctor appointments to figure out what it could be, as she didn’t have any other symptoms. Over the course of a few weeks, the lump grew, and she was diagnosed with stage 4 head and neck cancer.

After several rounds of chemotherapy and 35 radiation treatments, Rae Anne was told by her oncology team that she needed to wait at home for 3 months until her next scan, in order to see if the treatment worked. While living with anxiety and side effects from treatment, Rae Anne received a phone call from the palliative care team at the hospital where she received treatment, to schedule an appointment. She had never heard of palliative care and didn’t know what to expect.  … Read More

Living Well with Serious Illness: Ryan’s Pediatric Palliative Care Story

January 13, 2020

 

When Dan and Meghan’s five-year-old son Ryan was born with a rare genetic disorder that causes severe developmental delays and many other complications—they didn’t know where to turn. Seizures, surgeries, and sleepless nights due to respiratory issues that required frequent hospital stays in the first six months of Ryan’s life took a toll on the young parents. 

“I spent so much time on the phone dealing with insurance companies and coordinating doctor’s appointments that I wasn’t able to spend quality time with my newborn,” says Meghan. 

As the number of symptoms and medical issues increased, along with traveling long distance to get to the closest hospital, Meghan and Dan began searching for extra support. Social media research led them to a specialty that helps children and their families deal with all aspects of a serious illness.

This is Ryan’s palliative care story.  … Read More

Public Opinion Research on Palliative Care and Living with a Serious Illness

December 17, 2019

By Lisa Morgan 

Do people know much about palliative care? What are the top concerns of people living with a serious illness?  … Read More

Did Your State Make the Grade?

December 1, 2019

Did Your State Make the Grade?

By Lisa Morgan

Palliative care, also known as palliative medicine, is specialized  medical care that focuses on relief from the symptoms, pain and stress of serious illness. Appropriate at any age and at any stage of a serious illness, it is provided at the same time as all other treatments.

Palliative care is growing rapidly in the US as more and more people see the potential of palliative care to improve quality of care and quality of life. But getting palliative care is easier in some states than others.  … Read More

Living Well with Serious Illness: A Young Mother’s Colon Cancer Story

November 4, 2019

 

When Sarah, a mother of two young boys, was diagnosed with metastatic colon cancer at age 34, she was shocked and overwhelmed, but also determined to find the best care possible. She fought for a cancer doctor who would support her at every turn, and found specialists to address the many consequences of treatment she experienced. She enlisted her own pharmacist to help her understand and adjust the numerous medicines to minimize side effects. She found a pain specialist and physical therapist to help with difficult symptoms and side effects of treatment, and other doctors to round out her care team. She was willing to do anything to remain active and be able to care for her sons. 

“I think any serious illness is going to make a patient assess their life, their values, and their purpose,” says Sarah. “Patients deserve the highest level of care available and I wasn’t going to settle. Not for me and not for my children.”  

One day, she was telling a friend about the hand-selected care team she assembled to give her an extra layer of support through the cancer journey.  

“That sounds a lot like palliative care,” the friend said.  This is Sarah’s story.  … Read More

Tips for Discussing Your Diagnosis with Your Doctor

October 14, 2019

By Andrew Esch, MD

When you are diagnosed with a serious illness, it’s normal for you and your family to have a lot of questions. You may need help understanding the illness, treatment options and what the future holds. You may have concerns that you don’t know how to put into words yet. It can be very hard to think clearly, and even the best doctors don’t always explain things well.  … Read More

Palliative Care 101 for Those Living with Colorectal Cancer

Hosted by Fight Colorectal Cancer

To view the webinar, click here

If you’re living with colorectal cancer, you know that pain, symptoms, and the side effects of treatments can take a toll on your quality of life. They can stop you from doing the things that are important to you. They can also lead to unwanted hospital stays. But palliative care can help.  … Read More

A Quality Life: “Rock Man” Willie’s Cancer Story

September 30, 2019

 

At a clinic in Dayton, Ohio—which provides chemotherapy treatment to cancer patients—there’s a man known by all as “Rock Man” Willie. When he’s there, Willie stops at each station to chat with people who could use a good distraction. He carries with him small hand-painted rocks he’s designed, and he hands them out to cheer up others who, like himself, are facing cancer and other serious illnesses. In return for these support rocks, Willie only asks for one thing: a smile. … Read More

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