Helpful Resources and Links

Advocacy Organizations

• AARP
• American Cancer Society Cancer Action Network
• Patient Quality of Life Coalition

Alzheimer's Disease and Dementia

• Alzheimer's Association
• Caring Kind
• Dementia Society of America
• Lewy Body Dementia Association
• National Institute on Aging
• Smart Patients
• The Association for Frontotemporal Degeneration

Breast Cancer

• CDC — Breast Cancer
• Living Beyond Breast Cancer
• SHARE

Cancer (General)

• American Cancer Society
• American Cancer Society – Caregiver Resource Guide
• American Cancer Society Cancer Survivors Network
• CancerCare
• National Cancer Institute

Caregiver Help

• AARP Home Alone Alliance
• AARP: Caregiving Resource Center
• Advanced Senior Solutions
• Alzheimer's Association
• American Association of Caregiving Youth Caregiving Project
• American Cancer Society – Caregiver Resource Guide
• Archangels
• AssistGuide Information Services
• Care Pathways
• CareCommunity
• Caregiver Action Network
• Caring Bridge
• Caring from a Distance (CFAD)
• Department of Veteran's Affairs Caregiver Support
• Family Caregiver Alliance
• Family Caregiving 101
• Lotsa Helping Hands
• My Health Checklist
• National Adult Day Services Association
• National Association of Geriatric Care Managers
• National Respite Network
• Share the Care
• So Far Away: 20 Questions & Answers on Long-Distance Caregiving
• Strength for Caring
• The Caregiver Action Network
• The National Alliance for Caregiving
• The National Consumer Voice for Quality Long-Term care
• The Rosalynn Carter Institute for Caregiving
• This Caring Home
• UHF Next Step in Care
• Well Spouse Association

Colon Cancer

• Colon Cancer Alliance

COVID-19

• CDC
• Courageous Parents Network
• COVID-19 Fact Check
• National Patient Advocate Foundation
• Patient Advocate Foundation

Financial Help

• Medicare Rights Center
• Patient Advocate Foundation

General

• Family Doctor
• Informed Patient Institute
• Leadership Council of Aging Organizations
• My Health Checklist
• National Institute of Nursing Research
• National Resource on LGBT Aging
• New York Online Access to Health
• Patient Advocate Foundation
• The Eldercare Locator

Heart Disease

• American Heart Association
• CDC — Heart Disease

HIV

• AIDS United
• AIDS.gov
• CDC — HIV/AIDS

Hospice

• Caring Connections

Kidney Disease

• American Assn of Kidney Patients
• National Kidney Foundation

Lung Disease

• American Lung Association
• CDC — Lung Cancer
• Lung Cancer Alliance
• LUNGevity Foundation

Medical Decision Making (Advance Directives, Living Wills, Healthcare Proxies)

• Caring Connections
• FAIR Health
• Five Wishes
• PREPARE for your care
• The Conversation Project

Multiple Sclerosis

• National Multiple Sclerosis Society

Ovarian Cancer

• SHARE

Pancreatic Cancer

• Pancreatic Cancer Action Network

Parkinson's Disease

• Michael J. Fox Foundation
• Parkinson's Foundation

Patient Support

• My Health Checklist
• Patient Advocate Foundation
• What Matters Now

Pediatric Palliative Care

• Courageous Parents Network
• Initiative for Pediatric Palliative Care
• National Institute of Nursing Research
• Palliative Care: Conversations Matter

Physicians

• Palliative Care Provider Directory

Prostate Cancer

• CDC — Prostate Cancer

Research

• The National Palliative Care Research Center

Sickle Cell Disease

• Sickle Cell Disease Association of America

Stroke

• American Stroke Association
• CDC — Stroke
• National Stroke Association

VA (Veterans Affairs)

• The Veterans Health Administration Guide to Palliative Care
• VA's Facilities Locator and Directory

Young Adult Cancer

• CancerCare
• Stupid Cancer