{"id":60661,"date":"2018-05-20T15:00:50","date_gmt":"2018-05-20T19:00:50","guid":{"rendered":"https:\/\/getpalliativecare.org\/?p=60661"},"modified":"2018-12-23T10:48:14","modified_gmt":"2018-12-23T15:48:14","slug":"palliative-care-helps-als-patients-maintain-control","status":"publish","type":"post","link":"https:\/\/getpalliativecare.org\/es\/palliative-care-helps-als-patients-maintain-control\/","title":{"rendered":"Los cuidados paliativos ayudan a las personas que viven con ELA a mantener el control"},"content":{"rendered":"<p>Para las personas que viven con ELA, uno de los miedos m\u00e1s comunes es perder el control: control sobre su cuerpo y control sobre su vida. Los cuidados paliativos pueden ayudarle a mantener el mayor control posible, ayud\u00e1ndolo a usted y a su familia a mantener su calidad de vida.<\/p>\n<p><!--more--><\/p>\n<p>Los cuidados paliativos son atenci\u00f3n m\u00e9dica especializada para personas que padecen enfermedades graves como la ELA. Se centra en tratar el dolor, los s\u00edntomas y el estr\u00e9s de la enfermedad, brind\u00e1ndole a usted y a su familia un nivel adicional de apoyo. Lo brinda un equipo de m\u00e9dicos de cuidados paliativos, enfermeras y otros especialistas que trabajar\u00e1n junto con usted, su neur\u00f3logo y otros m\u00e9dicos para controlar sus s\u00edntomas y ayudarlo a tomar decisiones importantes a medida que avanza su enfermedad. Puede recibir cuidados paliativos a cualquier edad y en cualquier etapa de su enfermedad, y cuando vive con ELA, es mejor recibirlos lo antes posible.<\/p>\n<p>Pero \u00bfqu\u00e9 significa todo esto en la pr\u00e1ctica? Si acaba de recibir su diagn\u00f3stico, su equipo de cuidados paliativos puede ayudarlo a comprender completamente su enfermedad y su curso probable, as\u00ed como las intervenciones que pueden controlar sus s\u00edntomas, como dolor por espasmos o calambres musculares, entumecimiento o sensaci\u00f3n de ardor en las extremidades inferiores. El equipo tambi\u00e9n puede asegurarse de que usted mantenga su funci\u00f3n y fuerza durante el mayor tiempo posible. La dificultad para masticar o tragar puede ser un problema importante para una persona con ELA, por ejemplo, y los cuidadores pueden necesitar ayuda para aprender diferentes formas de manipular las comidas.<\/p>\n<p>Con el tiempo y a medida que se desarrollen sus s\u00edntomas, su equipo de cuidados paliativos mantendr\u00e1 conversaciones peri\u00f3dicas y profundas con usted sobre lo que es importante para usted y su familia. Tambi\u00e9n lo ayudar\u00e1n a explorar y comprender completamente los pros y los contras de las diferentes opciones de tratamiento, como sondas de alimentaci\u00f3n, respiradores e hidrataci\u00f3n. El objetivo siempre es asegurarse de que su atenci\u00f3n coincida con sus objetivos y con lo que usted desea. Todo lo que pueda controlarse, ser\u00e1 controlado.<\/p>\n<p>Si usted o un ser querido necesita cuidados paliativos, no espere para solicitar una derivaci\u00f3n. La participaci\u00f3n temprana en cuidados paliativos puede brindarle un nivel adicional de apoyo para ayudarlo a usted y a su familia a disfrutar de la mejor calidad de vida posible.<\/p>\n<p>Casi todos los hospitales grandes cuentan con equipos de cuidados paliativos, y tambi\u00e9n est\u00e1n disponibles en cl\u00ednicas ambulatorias y para visitas domiciliarias, seg\u00fan su zona. Puedes visitar <a href=\"https:\/\/getpalliativecare.org\/es\/\">ObtengaCuidadosPaliativos.org<\/a> Para obtener m\u00e1s informaci\u00f3n, busque cuidados paliativos en el <a href=\"https:\/\/getpalliativecare.org\/es\/provider-directory\/\">Directorio de proveedores<\/a>y toma un breve <a href=\"https:\/\/getpalliativecare.org\/es\/rightforyou\/\">prueba<\/a> para ver si podr\u00eda necesitar cuidados paliativos.<\/p>","protected":false},"excerpt":{"rendered":"<p>Para las personas que viven con ELA, uno de los miedos m\u00e1s comunes es perder el control: control sobre su cuerpo y control sobre su vida. Los cuidados paliativos pueden ayudarle a mantener el mayor control posible, ayud\u00e1ndolo a usted y a su familia a mantener su calidad de vida.<\/p>","protected":false},"author":12,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1],"tags":[5235,5236,5154,5220,5237,5240,5239,5181,5175,5216,5238,5213],"class_list":["post-60661","post","type-post","status-publish","format-standard","hentry","category-articles","tag-als","tag-amyotrophic-lateral-sclerosis","tag-benefits-of-palliative-care","tag-how-to-maintain-comfort-care-during-chronic-illness","tag-lou-gehrigs-disease","tag-palliative-care-and-als","tag-palliative-care-and-anxiety","tag-palliative-care-and-depression","tag-palliative-care-and-pain","tag-palliative-care-and-symptom-management","tag-symptoms-of-als","tag-treating-pain"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ALS | Managing Symptoms | Palliative Care Blog<\/title>\n<meta name=\"description\" content=\"For people living with ALS, one of the most common fears is losing control: control over your body, and control over your life. 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