{"id":57371,"date":"2016-05-27T11:39:44","date_gmt":"2016-05-27T15:39:44","guid":{"rendered":"https:\/\/getpalliativecare.org\/?p=57371"},"modified":"2016-07-26T16:21:13","modified_gmt":"2016-07-26T20:21:13","slug":"new-resources-help-families-navigate-pediatric-palliative-care","status":"publish","type":"post","link":"https:\/\/getpalliativecare.org\/es\/new-resources-help-families-navigate-pediatric-palliative-care\/","title":{"rendered":"Nuevos recursos para ayudar a las familias a navegar los cuidados paliativos pedi\u00e1tricos"},"content":{"rendered":"

El Instituto Nacional de Investigaci\u00f3n en Enfermer\u00eda<\/a> (NINR) ha creado nuevos materiales para familias de ni\u00f1os con enfermedades graves, como parte de su Campa\u00f1a Cuidados paliativos: Las conversaciones importan<\/a> Crear conciencia y mejorar la comunicaci\u00f3n sobre los cuidados paliativos pedi\u00e1tricos. Los materiales recientemente publicados incluyen una hoja informativa y una tarjeta de recursos para ayudar a las familias a encontrar apoyo y est\u00e1n disponibles tanto en ingl\u00e9s como en espa\u00f1ol.<\/p>\n

La directora del NINR, la Dra. Patricia A. Grady, dijo: \u201c\u2026los cuidados paliativos pueden ser incre\u00edblemente \u00fatiles para los pacientes y sus familias en cualquier etapa de una enfermedad. Esperamos que estos materiales mejoren la comprensi\u00f3n de los pacientes y sus familias sobre los cuidados paliativos pedi\u00e1tricos y faciliten el debate con los equipos de atenci\u00f3n sanitaria\u201d. Afrontar el diagn\u00f3stico de una enfermedad grave en un ni\u00f1o es dif\u00edcil para toda la familia. Es importante que su hijo, su familia y usted reciban el apoyo y la atenci\u00f3n que necesitan. Los cuidados paliativos pueden ayudar.<\/p>\n

Los materiales est\u00e1n disponibles en el sitio de la campa\u00f1a Cuidados Paliativos: Las Conversaciones Importan del NINR en https:\/\/www.ninr.nih.gov\/conversationsmatter<\/a>y en la nueva p\u00e1gina de inicio de la campa\u00f1a en espa\u00f1ol de NINR en https:\/\/ninr.nih.gov\/conversacionesvaliosas<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"

El Instituto Nacional de Investigaci\u00f3n en Enfermer\u00eda (NINR) ha creado nuevos materiales para familias de ni\u00f1os con enfermedades graves, como parte de su campa\u00f1a Cuidados Paliativos: Las Conversaciones Importan para crear conciencia y mejorar las comunicaciones sobre los cuidados paliativos pedi\u00e1tricos.<\/p>","protected":false},"author":12,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1],"tags":[1796,1762,3412,1747,1773,1776,1778,1748,3411,4955,1756,1758,1771],"class_list":["post-57371","post","type-post","status-publish","format-standard","hentry","category-articles","tag-added-layer-of-support","tag-caregivers","tag-caring-for-a-loved-one","tag-children","tag-get-palliative","tag-get-palliative-care","tag-how-to-get-palliative-care","tag-palliative-care","tag-palliative-care-treatment","tag-pediatric","tag-quality-of-life","tag-serious-illness","tag-what-palliative-care-is-and-why-it-matters"],"acf":[],"yoast_head":"\nPediatric Palliative Care Resourses<\/title>\n<meta name=\"description\" content=\"Pediatric Palliative Care resources from the National Institute of Nursing Research (NINR) as part of its Palliative Care: Conversations Matter campaign.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/getpalliativecare.org\/es\/new-resources-help-families-navigate-pediatric-palliative-care\/\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:title\" content=\"Pediatric Palliative Care Resourses\" \/>\n<meta name=\"twitter:description\" content=\"Pediatric Palliative Care resources from the National Institute of Nursing Research (NINR) as part of its Palliative Care: Conversations Matter campaign.\" \/>\n<meta name=\"twitter:creator\" content=\"@getpalliative\" \/>\n<meta name=\"twitter:site\" content=\"@GetPalliative\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"GetPalliativeCare.org\" \/>\n\t<meta name=\"twitter:label2\" content=\"Tiempo de lectura\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minuto\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/getpalliativecare.org\/es\/new-resources-help-families-navigate-pediatric-palliative-care\/\",\"url\":\"https:\/\/getpalliativecare.org\/es\/new-resources-help-families-navigate-pediatric-palliative-care\/\",\"name\":\"Pediatric Palliative Care Resourses\",\"isPartOf\":{\"@id\":\"https:\/\/getpalliativecare.org\/#website\"},\"datePublished\":\"2016-05-27T15:39:44+00:00\",\"dateModified\":\"2016-07-26T20:21:13+00:00\",\"author\":{\"@id\":\"https:\/\/getpalliativecare.org\/#\/schema\/person\/c4297d00abd1da0cb80af0537653e7e7\"},\"description\":\"Pediatric Palliative Care resources from the National Institute of Nursing Research (NINR) as part of its Palliative Care: Conversations Matter campaign.\",\"inLanguage\":\"es\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/getpalliativecare.org\/es\/new-resources-help-families-navigate-pediatric-palliative-care\/\"]}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/getpalliativecare.org\/#website\",\"url\":\"https:\/\/getpalliativecare.org\/\",\"name\":\"Get Palliative Care\",\"description\":\"Palliative care is specialized care focused on the pain, symptoms and stress of serious illness. 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