Palliative Care Resources

Advance Directives (living wills, healthcare proxies)
Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), provides free, in-depth resources and information on advance directives, including state-by-state forms and much more. (caringinfo.org)
do your proxy.org is a website that makes advance directives easy and accessible. This free tool helps people create both healthcare proxies and living wills online. (www.doyourproxy.org) more . . .
Advocacy
AARP is a non-profit, nonpartisan membership organization, for persons 50 and older, dedicated to addressing their interests and needs. Its goal is to improve quality of life via affecting positive social change and adding value to its members, through advocacy, information and service. (www.AARP.org)
National Coalition for Cancer Survivorship The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country and a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors. (www.cansearch.org) more . . .
AIDS
AIDS.ORG is a non-profit organization, with a strict privacy policy, that aims to help prevent HIV infections and improve quality of life for those affected by HIV and AIDS. It offers education and an open exchange of prevention, testing and treatment information on a centralized website. (www.aids.org) more . . .
Alzheimer's
Alzheimer`s Association is the first and largest voluntary organization dedicated to preventing, treating and curing Alzheimer`s. It provides multiple programs and services, including advocacy, education, support groups, a 24/7 Helpline and an online community to connect with others impacted by Alzheimer`s. (www.alz.org) more . . .
Cancer
American Cancer Society is nationwide community-based voluntary health organization committed to eliminating cancer as a major health problem. The organization strives to prevent cancer, save lives and diminish suffering from cancer, through research, advocacy, education and service. (www.cancer.org)
American Cancer Society Cancer Survivors Network is a non-commercial, private and secure website that enables cancer survivors to communicate with others who have shared interests and experiences. Members receive access to multiple supportive services, including joining existing and creating their own online support communities, designing personal web pages to share experiences, inspirations and thoughts and receiving a monthly e-newsletter. (www.acscsn.org)
CancerCare is a national, non-profit organization dedicated to providing free support services to anyone affected by cancer. Offerings include counseling, education and financial assistance. Individual and group counseling is available face-to-face, over the phone and online. (www.cancercare.org)
Lance Armstrong Foundation is a non-profit organization committed to empowering, inspiring and providing practical information and tools to people affected by cancer. Primary goals of the organization include prevention, access to screening and care, improved quality of life for cancer survivors and investment in research. (www.livestrong.org) more . . .
Caregiver Help more . . .
Share the Care is an organization that provides a model for group caregiving so that the burden does not fall on the shoulders of a single or a couple of individuals. It was inspired by the experience of the founder who was called on to gather a group of friends to find a way to help another friend cope with cancer. (sharethecare.org)
Family Caregiver Alliance is a nonprofit organization that offers a wealth of information for families and friends caring for adults with chronic, disabling illnesses. Newsletters, fact sheets (many in Spanish and Chinese), online support groups, audio workshops, resource lists, policy updates, caregiver advice and more are available free of charge on the Web site. (www.caregiver.org) more . . .
Financial Help more . . .
Medicare Rights Center MRC is the largest independent source of healthcare information and assistance in the United States for people with Medicare. MRC helps older adults and people with disabilities get good, affordable healthcare. (medicarerights.org) more . . .
General more . . .
Family Doctor This Web site provides information for the family on medical conditions and treatments, guidelines for healthy living, and a patient guide to assist in choosing doctors and receiving quality care. It is operated by the American Academy of Family Physicians (AAFP). (familydoctor.org)
WebMD WebMD provides valuable health information, tools for managing your health, and support to those who seek information. You can trust that our content is timely and credible. (www.webmd.com)
World Health Organization The World Health Organization incorporates information about palliative care on the cancer section of their website. It covers general information about palliative care and links to further resources. (www.who.int/entity/cancer/palliative/en/) more . . .
Heart
American Heart Association is a national, voluntary health organization that strives to reduce disability and death from cardiovascular diseases and stroke. (www.americanheart.org) more . . .
Hospice more . . .
Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), provides free, in-depth resources and information on hospice care, advance directives, including state-by-state forms and much more. To locate a hospice provider in your area, click here. (caringinfo.org)
Lung
American Lung Association is a national, voluntary health organization that works to prevent lung disease and promote lung health. The organization places special emphasis on tobacco control, asthma and environmental health. (www.lungusa.org) more . . .
Pediatric Palliative Care
Initiative for Pediatric Palliative Care The Initiative for Pediatric Palliative Care (IPPC) is both an education and a quality improvement effort, aimed at enhancing family-centered care for children living with life-threatening conditions. (ippcweb.org) more . . .
Physicians
ABHPM Physician Directory is an easy way for patients to find certified palliative care physicians. The directory is located on the website home page. (www.abhpm.org) more . . .
Research
The National Palliative Care Research Center (NPCRC) is a unique national organization whose mission is to stimulate, develop, and fund new research directed at providing relief from distressing symptoms and improving care for people facing serious illness. It offers resources for palliative care researchers as well as information about the most recent advances in research. (www.npcrc.org) more . . .
Stroke
American Stroke Association, a division of the American Heart Association®, is a national organization with volunteer leadership that strives to reduce the risk and occurrence of stroke. It offers a variety of programs, products and services, including education for patients and healthcare professionals, advocacy and stroke survivor and caregiver outreach. (www.strokeassociation.org)
National Stroke Association is a national organization dedicated to decreasing the incidence and impact of stroke through education, creating community outreach programs and advocating for continued improvement of stroke patient care. The NSA works to increase public awareness of stroke prevention, symptom recognition, treatment options and rehabilitation. (www.stroke.org) more . . .
VA
The Veterans Health Administration, one of three branches of the Department of Veterans Affairs, provides palliative care services to enrolled veterans. VA has an interactive web-based Facilities Locator and Directory that provides contact information for all of the county's VA Medical Centers. (www.va.gov) more . . .